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A Drug & Device Evidence Expert,

Neurophysiologist & Consultant.

Let's get the Patient-Engagement Right!

Writer's picture: Krutika GohilKrutika Gohil

Updated: Feb 24

Yesterday after the elections, I kept hearing… “𝗪𝗮𝗶𝘁, 𝗛𝗼𝘄 𝗗𝗶𝗱 𝗪𝗲 𝗚𝗲𝘁 𝗛𝗲𝗿𝗲?” 🤔


No surprise—this happens 𝘄𝗵𝗲𝗻 𝘄𝗲 𝗴𝗲𝘁 #𝗲𝗻𝗴𝗮𝗴𝗲𝗺𝗲𝗻𝘁 𝘄𝗿𝗼𝗻𝗴. 😑


We see this in #ClinicalTrials, too—when #PatientEngagement isn't done the right way.

🔴 𝗦𝘂𝗿𝗳𝗮𝗰𝗲-𝗹𝗲𝘃𝗲𝗹 𝗲𝗻𝗴𝗮𝗴𝗲𝗺𝗲𝗻𝘁 𝗰𝗿𝗲𝗮𝘁𝗲𝘀 𝗯𝗹𝗶𝗻𝗱 𝘀𝗽𝗼𝘁𝘀. Not asking early or asking the wrong questions—or the right ones the wrong way—means missing what truly matters in #HealthOutcomes and #PatientReportedOutcomes.


🔇 𝗜𝗴𝗻𝗼𝗿𝗶𝗻𝗴 𝗸𝗲𝘆 𝘃𝗼𝗶𝗰𝗲𝘀 𝗱𝗼𝗲𝘀𝗻’𝘁 𝗺𝗮𝗸𝗲 𝗰𝗼𝗻𝗰𝗲𝗿𝗻𝘀 𝗱𝗶𝘀𝗮𝗽𝗽𝗲𝗮𝗿. They resurface elsewhere, often in ways no one expected—just like in #Regulatory pushback or trial #Recruitment struggles.


🎯 𝗪𝗵𝗮𝘁 𝘄𝗲 𝗺𝗲𝗮𝘀𝘂𝗿𝗲 𝘀𝗵𝗮𝗽𝗲𝘀 𝗻𝗼𝘁 𝗷𝘂𝘀𝘁 𝘄𝗵𝗮𝘁 𝘄𝗲 𝘀𝗲𝗲, 𝗯𝘂𝘁 𝗵𝗼𝘄 𝘄𝗲 𝗮𝗰𝘁. A poorly chosen Clinical Outcome Assessment (#COA) can make a meaningful treatment look insignificant and shift entire narratives in #DrugDevelopment or #RWE.


Something to think about, whether in #PatientCenteredResearch, #ClinicalTrials or beyond.


For studies, here’s 👇 𝗵𝗼𝘄 𝘁𝗼 𝗯𝘂𝗶𝗹𝗱 𝗺𝗲𝗮𝗻𝗶𝗻𝗴𝗳𝘂𝗹 𝗽𝗮𝘁𝗶𝗲𝗻𝘁 𝗲𝗻𝗴𝗮𝗴𝗲𝗺𝗲𝗻𝘁 𝗶𝗻 𝗖𝗢𝗔 development—because designing 𝗪𝗜𝗧𝗛 𝗽𝗮𝘁𝗶𝗲𝗻𝘁𝘀, 𝗻𝗼𝘁 𝗷𝘂𝘀𝘁 𝗙𝗢𝗥 𝘁𝗵𝗲𝗺, makes all the #Difference. 𝗧𝗮𝗸𝗲 𝗮 𝗹𝗼𝗼𝗸! 👇






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